The Legacy

So for those of you who don’t really know much about me, I have Cystic Fibrosis. It’s something I have always struggled with emotionally. Physically, I have been pretty damn lucky. But when it comes to the emotional side I have always felt so “detached” for lack of a better term. I ignore it, I make light of it, I always act like it doesn’t bother me every single second. And I think recently I’ve discovered the reason for the “lack of connection” to the emotional side of it. and it was just that- A LACK OF CONNECTION. My family and I have recently partnered with a well-known individual who has his own cystic fibrosis foundation. He focuses on that connection which is desperately needed in the cystic fibrosis community. Don’t get me wrong, the amount of research that organizations such as the Cystic Fibrosis Foundation does is incredible and most likely I wouldn’t be sitting here writing this to you had they not made such great strides in that aspect, but what about hugging a mom and dad with a 6 year old son with Cystic Fibrosis who stay up worrying every night about what their son’s future holds?

What about meeting (and my meeting I mean waving a screaming to each other from across a bar) a 31 year old “B-E-A-U-tiful) woman who underwent a double lung transplant and is thriving and did I mention stunning? This foundation does that. I have always felt like the reason for my lack of emotional connection with my own disease is because something always felt like it was missing. You can even ask my parents. My mother swears that growing up, the cystic fibrosis “community” was non-existent. They may have even purposefully kept us away from each other for fear of infections or bacteria being passed from one person with cystic fibrosis to another, essentially contaminating each other. This foundation, The Colton Underwood Legacy Foundation, has given me purpose that I so unknowingly desperately needed. I finally feel like I belong somewhere. I have “people” and I can give back to those families and individuals who have had cystic fibrosis impact their lives in so many different ways. Watching an 11-year old become an honorary Tennessee Volunteer cheerleader, or a 6 year old play laser tag, bumper cars, and do a ropes course with Colton, just fills my heart with so much joy and hope for the future. I feel full, complete, satisfied.

Not to mention that these recipients are receiving life changing medical equipment from Afflovest that without insurance can cost $16K a pop. I don’t know about you but I don’t have that type of money to throw around willy nilly. And for us, its not really an option. We HAVE to have it. So if you haven’t looked into what this foundation does or the impact it has I highly recommend checking out the website at http://www.coltonslegacy.org.

Another thing that you should know about me is that I LOVE WINE, more importantly, a good rose wine. And what’s better than a wine that supports a good cause? Nothing. Literally nothing. So I’ve been given a unique opportunity to offer a 10% off code for all orders of the very special legacy wine label. Please visit http://www.coltonslegacy.org/legacy-wine for your order today as quantities are limited. And I’m not gonna lie, you may want to order as much as possible because who knows how long it will be in stock. I am for sure stocking up. Us code “EMJAY10” for 10% off your order today!

xoxoxoxo

-Becoming EmJay

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